On November 11, the family of 5-year-old Charley Kauf—who was born with a rare, life-threatening genetic skin disorder called epidermolysis bullosa (or EB)—hosted their inaugural fundraising event to benefit EB Research Partnership. Emceed by ESPN’s Scott Van Pelt, the event at Savage Smyth featured entertainment by Kat V and DJ White Shadow, and raised more than $320,000 for EB Research Partnership, the largest nonprofit dedicated to funding research aimed at treating and curing EB.
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Brooke and Jennifer Kauf
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Hope Firsel, Charlie Saffro, and Brooke Kauf
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Kat V
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Vince and Jessica Anzalone
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Brian Jones, Dave Stefan, Jeff Gervasio, Scott Nance, emcee Scott Van Pelt, Dan Castle, and Michael Kauf
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Brooke Kauf, Charley’s nurse Alla, and Michael Kauf
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Amy and Dan Levin
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Adam Becker, Zac Armintrout, Ben Galatz, Kyle Henrickson, and Jack Serda
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Emcee and ESPN's Sportscenter Host Scott Van Pelt
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Brooke Kauf
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Brooke Kauf and Charley’s dermatologist Dr. Amy Paller
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Margaret and Jason Adess
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Jennifer Kauf, Colleen Tanjeloff, Jamie Connelly, and Samm Makris
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Emily Zafrani, Andre Zafrani, and Christina Mann
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Beverly and Bruce Young
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Andrew and John Landon with Jo, Alexi, and George Giannoulias
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Susan and Daryll Goldberg with Margaret Adess
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Corey Klein, Dan Rosenbloom, and Brigette Wolf
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Hope Firsel, Kate Kaplan, Colleen Belden, and Eliza Caplan
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Scott Van Pelt with Jamie and Alex Silver
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Michael and Erica Fishman with Brad Jarol
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John Kaufman, Jason Erkes and Brad Young
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Lucas and Carolina Stoioff
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Anna Galati with Kelly and Paul Blair and John Galati
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Stephanie Baum, Charley Saffro, and Melissa Rosenbloom
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Jason Erkes, Jimmy Guadagno, Jared Pinku, and Andreas Zafiriadas
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Jordan Cooper, Teryn Kessel and Brittany Zelwin with Heather and Ben Sher
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Anna Galati, Robyn Henrickson, Ann Becker, Alissa Galatz, Jessica Hall, Christine Armintrout, and Agatha Serda
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The Landans and DJ White Shadow
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Michael Sawant and Jennifer Sawant with Tracey and Jonathan Wolfe and Zeff and Katie Asner
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Brooke and Michael Kauf
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Lucas Stoiff and Michael Kauf
Photo: Joshua Albanese